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Archive for April 2014

Meeting with the neurosurgeon

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I got to meet with Dr. Robert Gewirtz this morning to plot next steps. His recommendation mirrors the same feeling that Julie and I have had since the start – let’s get this thing out of there. And so I’m going to be heading in for a full resection in a few weeks. Here are a few things that people have asked about:

What are the possible drawbacks? You know when you want to tell someone that something isn’t difficult you say “it ain’t brain surgery”. This is apparently difficult. Fortunately, the surgeon I have is skilled. Still, he was clear in making sure we understood that there are risks – some of which are very bad indeed. But the most likely outcome at this point is that I’ll lose some motion and sensory capacity in my right leg. The tumor is right on the part of the motor/sensory strip that controls that. So, I’ll probably have physical therapy to go through, could require some form of assistance (e.g. cane, boot, brace) to help me walk, and am likely to lose some amount of sensation in the leg.

Am I going to be on chemo/radiation? What is my life expectancy? What type of tumor is this? These and bunches of other questions are really not knowable at this point. Once they get the tumor out, they’ll be able to do pathology on it to better understand what’s going on, how truly active it is, and what the appropriate long term treatment and prognosis is. He still feels comfortable predicting that it’s a low-grade glioma, but more details about the severity of it beyond that still remain to be seen. So, stay tuned.

How long am I going to be in the hospital and how long am I out of work? At least 2 days in the hospital, but the actual length depends on how I do in recovery. I’m likely going to be out of work for 4-6 weeks, but that too is only a rough estimate at this point. I fully expect to put a serious dent in my Netflix queue, but I know I’ll be itching to get back as soon as possible.

Will I be awake for the surgery? No. He’s participated in procedures where this was the case, but he says they have better methods for this now.

I’m experiencing occasional instances of my right leg going numb for 15-90 seconds. Maybe two days per week, 1-2 times per day. Are those seizures? Probably – though apparently only mild ones. Good to know.

I feel amazingly fortunate for all the love and support you all have sent my way. It’s hard to think you’d count yourself lucky after learning that you have a brain tumor, but I have been truly blessed the last two weeks. None of us knows ahead of time the path our lives will travel, the ways in which God will call on us to bear witness and support us when the struggle grows difficult. But I most certainly am gaining an appreciation for that now. That support has come through all of you. Even if you weren’t aware of it, those of you who have been sympathetic, sent a card, or offered me a ride to/from work have been the hands and feet of God. Thank you all.

 

Written by mdoel

April 7, 2014 at 7:06 pm

Posted in Uncategorized